PO.CL04.02 · 临床研究

图像医学:一种以患者为中心的肿瘤学方法

Graphic medicine: A patient-centered approach to oncology

海报缩略图:图像医学:一种以患者为中心的肿瘤学方法
编号 2477 展板 7 时间 4/20 09:00–12:00 区域 Section 42 主讲 Alexandra Bartholomew, BA
分会场 Community-Engaged Approaches to Equity Across the Cancer Journey: From Prevention to Trial Design
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作者与单位 Authors & Affiliations

Alexandra Bartholomew1, Pui Cheng2, Amelia Jernigan1, Tara Castellano1, Counti McCutchen3, Julia Cazabon1, Audrey Marsh1, Ronja Bodola1, Siyi Cheng1, Jason Mussell1

1Louisiana State University Health Sciences Center - New Orleans, New Orleans, LA,2Touro Infirmary, New Orleans, LA,3University of Chicago, Chicago, IL

摘要 Abstract

中文摘要
图像医学将图像叙事与医学相结合。在本研究中,我们旨在通过创建、分发和评估一个关于新诊断癌症患者的叙事,来探讨图像和漫画作为妇科肿瘤患者治疗和教育工具的潜在效用。本项目是一项多阶段混合方法研究。为指导方向和内容,我们对一个妇科肿瘤支持小组的成员进行了焦点小组访谈。确定一部关于应对策略的图像作品最为有用。第一稿经过多次修改,并被翻译成西班牙语和越南语。最终的图像作品和调查问卷在四家妇科肿瘤诊所实施。任何年龄、处于治疗任何阶段的患者均符合条件。调查问卷包括人口统计学问题以及关于该漫画的有用性、共鸣性和喜爱度的问题。在统计分析方面,使用描述性统计来概括研究人群。使用卡方拟合优度检验来确定参与者的回答是均匀分布还是偏向某一特定方向。使用ANOVA检验来比较各类别参与者的回答。155名患者参与了调查。绝大多数人认为该图像作品令人愉悦、有共鸣、有用,并有助于减轻焦虑(p<0.001)。我们的结果表明,图像医学干预在妇科肿瘤环境中是有用的。该项目在很大程度上受到患者意见的指导。本研究成功证明了图像医学干预是向妇科肿瘤患者传递医疗保健信息的一种可行方法。
查看英文原文 English abstract
Graphic medicine combines graphic narrative with medicine. In this study, we aimed to investigate the potential usefulness of graphics and comics as a therapeutic and teaching tool for gynecologic oncology patients by creating, distributing, and evaluating a narrative about a patient with a newly diagnosed cancer. This project was a multistage mixed methods study. To guide direction and content, focus groups were conducted with members of a gynecologic oncology support group. It was determined that a graphic on coping strategies would be most useful. The first draft underwent several modifications and was translated into Spanish and Vietnamese. The final graphic and survey were implemented into four gynecologic oncology clinics. Patients of any age and at any stage in their treatment were eligible. The survey included demographic questions as well as questions on the usefulness, relatability, and likability of the comic. For statistical analysis, descriptive statistics were used to summarize the study population. The chi-square goodness-of-fit test was used to determine whether participant responses were evenly distributed or skewed in a particular direction. The ANOVA test was used to compare participant responses across categories. 155 patients took the survey. The vast majority found the graphic enjoyable, relatable, useful, and helpful for reducing anxiety (p<0.001). Our results suggest that graphic medicine interventions are useful in a gynecologic oncology setting. The project was guided heavily by patient input. This study was successful in determining that graphic medicine interventions are a feasible method of delivering healthcare information to gynecologic oncology patients.
利益披露 Disclosure
A. Bartholomew, None.. P. Cheng, None.. A. Jernigan, None.. T. Castellano, None.. C. McCutchen, None.. J. Cazabon, None.. A. Marsh, None.. R. Bodola, None.. S. Cheng, None.. J. Mussell, None.

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