PO.ADV01 · 患者倡导
超越知情同意：一个贯穿癌症生存全程的、实现真正共同决策的社会工作框架
Beyond informed consent: A social work framework for authentic shared decision-making across the cancer survivorship continuum
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
共同决策的愿景与现实 共同决策（SDM）——即临床医生与患者协作、依据最佳证据和患者价值观做出医疗决策的过程——被广泛推崇为以患者为中心的癌症诊疗的黄金标准。然而，作为一种理想概念的 SDM 与作为患者在癌症生存过程中真实经历的 SDM 之间，仍存在显著差距。关于患者赋能的社会工作视角 作为一名持证的高级社会工作者（Licensed Master Social Worker），我曾在父亲长达七年的 IV 期胰腺神经内分泌肿瘤（NET）历程（2005—2012年）中担任照护者，2014—2016年在 Texas Children's Hospital 从事儿科肿瘤工作，如今通过 Patient Empowerment Network 在全国范围内领导患者赋能倡议。我亲眼见证了结构性障碍、权力动态以及社会心理因素如何深刻影响患者有意义地参与关乎其诊疗与生存决策的能力。本海报提出一个社会工作框架，用于理解在癌症生存全程中实现真正 SDM 所面临的障碍，并提出超越空谈、走向真正患者赋能的研究重点与实践干预措施。
查看英文原文 English abstract
The Promise and Reality of Shared Decision-Making Shareddecision-making (SDM) - the process where clinicians and patients collaborateto make healthcare decisions informed by best evidence and patient values - iswidely endorsed as the gold standard for patient-centered cancer care. Yetsignificant gaps persist between SDM as an aspirational concept and SDM aslived reality for patients navigating cancer survivorship. A Social WorkPerspective on Patient Empowerment As a Licensed Master Social Worker who servedas caregiver for my father during his seven-year Stage IV pancreatic NETjourney (2005-2012), worked in pediatric oncology at Texas Children's Hospital(2014-2016), and now leads patient empowerment initiatives nationally throughPatient Empowerment Network, I have witnessed how structural barriers, powerdynamics, and psychosocial factors profoundly shape patients' capacity toparticipate meaningfully in decisions affecting their care and survival. Thisposter presents a social work framework for understanding barriers to authenticSDM across the cancer survivorship continuum and proposes research prioritiesand practice interventions that move beyond rhetoric to genuine patientempowerment.