PO.ADV01 · 患者倡导
一对一同伴支持对青少年及青年（AYA）癌症患者和生存者的积极影响
The positive impact of one-to-one peer support on AYA cancer patients and survivors
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
通过经过培训的导师项目提供的一对一同伴支持，可改善青少年及青年（AYA）癌症患者和照护者在总体心理健康、NCI 量表痛苦程度以及对未来希望方面的患者报告结局。当为这一人群中的患者和照护者匹配能够在生活处境和年龄相关问题（如治疗期间工作、照顾年幼子女、生育力保存、关系压力和经济毒性）上产生共鸣的导师时，患者报告在心态和心理健康方面获得了更大的积极影响。方法：当一位寻求支持者联系我们的组织时，我们的癌症支持协调员会完成一次全面的接案通话，评估来电者的需求和当前处境，并评估其当前的心理健康状态。随后，他们会被匹配到一位经过类似评估、受过培训并经审核的导师。通过追踪导师提交的访视记录以及寻求支持者的调查反馈，我们能够评估匹配的有效性和适配性。如果患者的处境或预后发生变化，可根据需要进行补充匹配或对外转介。该项目以虚拟方式提供且对参与者免费，从而消除了目标人群获取支持的障碍，并提高了参与度和积极结局。结果：在2023年1月至2025年7月期间，共有119名 AYA 患者或照护者通过 Cancer Hope Network 与导师完成匹配。每次匹配至少包含1次电话访视，其中75%的匹配完成了不止一次与导师的访视。该群体的调查反馈显示，在心态、痛苦程度、对未来的希望以及孤立感方面均有显著改善。在调查应答者中，77%报告 NCI 量表上的痛苦程度有所下降。与导师联系前，量表上的平均自评分为8分；据调查应答者自评，联系后的平均分为5分。有数位应答者报告痛苦程度显著下降，在量表上下降多达6至7分。AYA 寻求支持者报告与导师讨论了人际关系、工作或学习、育儿、心理健康、生育力、孤立感以及缺乏支持等问题。众多应答者表达了导师制带来的积极影响，其中一位在怀第三胎期间被诊断为转移性疾病的年轻女性分享道："我的导师给了我极大的帮助，让我抱有希望——即使预后"不佳"，我或许仍能陪伴孩子长大。她一直非常善良和给予支持，我真的很感激能有另一位经历过同样处境、且优先事项与我相似的年轻母亲的视角。谢谢你们为我做的匹配！"这些发现凸显了根据 AYA 患者和照护者的生活处境及社会心理需求量身定制的、可及且富有同理心的同伴支持的价值。
查看英文原文 English abstract
One-to-onepeer support through a trained mentor program improves patient reportedoutcomes regarding overall mental health, distress on NCI scale, and hope forthe future in adolescent and young adult cancer patients and caregivers. Whenmatching patients and caregivers in this demographic with mentors who canconnect with life circumstances and age-related issues such as working duringtreatment, caring for young children, fertility preservation, relationshipstress, and financial toxicity, patients report greater positive impact onoutlook and mental health. Methods: When a support seeker contacts ourorganization, our cancer support coordinators complete a thorough intake callwhere they assess the caller's needs and current circumstances, as well as evaluatethe support seeker's current state of mental health. They are then matched with a trained andvetted mentor who has been through a similar evaluation. Through tracking visitlogs submitted by mentors as well as survey feedback from our support seekers,we can evaluate the effectiveness and suitability of the match. If thepatient's circumstances or prognosis change, supplemental matches or outsidereferrals can be made as necessary. The program is offered in a virtualcapacity and free of cost to the participants, so it eliminates barriers tocare for our target demographic and increases participation and positiveoutcomes. Results: Between January 2023 and July 2025, 119 AYA patients orcaregivers were matched with a mentor through Cancer Hope Network. Each matchhad at least 1 phone call visit, and 75% of them completed more than one visitwith a mentor. The survey feedback from this group demonstrates significantimprovement in outlook, distress levels, hope for the future, and feelings ofisolation. Among survey respondents, 77% reported decreased levels of distresson the NCI scale. The averageself-reported score on the scale before connecting with a mentor was 8. Theaverage post-connection score was 5 as self-reported by surveyrespondents. Several respondentsreported significant decreases in distress, by as many as 6 or 7 points on thescale. AYA support seekers report discussing relationships, work or school,parenting, mental health, fertility, isolation, and lack of support with theirmentors. Numerous respondents voiced thepositive impact of mentorship including one young woman diagnosed withmetastatic disease while pregnant with her third child who shared, “My mentorhas been so helpful in giving me HOPE that even with a “poor prognosis” I maystill be around to raise my kids. She has been so kind and supportive, and Ireally appreciate having the perspective of another young mom who has gonethrough the same thing and whose priorities mirror mine. Thank you for matchingme!” These findings underscore the value of accessible, empathetic peer supporttailored to AYA patients and caregivers' life circumstances and psychosocialneeds.