PO.ADV01 · 患者倡导

From survivor to partner: integrating patient voice across the cancer research continuum

海报缩略图:From survivor to partner: integrating patient voice across the cancer research continuum
编号 ADV19 展板 19 🕑 4/20 02:00–05:00 📍 Section 5 主讲 Jacqueline Smith
分会场 Advocates Poster Session 1
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作者与单位 Authors & Affiliations

JACQUELINE Smith

Ovarian Cancer Alliance of San Diego, Rancho Santa Fe, CA

摘要 Abstract

From bench to bedside, cancer research translates scientificinnovation into patient care - yet integrating the patient voice across thatcontinuum requires a shift in research culture. For those who choose to movebeyond survivorship into advocacy, the role of patient partner transformslived experience into a scientific asset, amplifying impact from discovery tocare.Clinical outcomes are the cornerstone of cancer research -yet treatment carries costs that extend far beyond - physical, psychological,economic, and caregiver burden. Patient partners bring these dimensions to theforefront, ensuring research reflects the full human cost of cancer treatment.Their contributions span the research process - from study design and grantapplications to clinical trial recruitment and dissemination of findings -while extending beyond into policy and legislative advocacy and fundraising.Realizing the full potential of this partnership demandsconfronting real barriers: communication gaps, structural exclusion, anddiffering priorities. Bridging these requires shared commitment - researcherscommunicating in lay terms; patient partners deepening their understanding ofthe scientific process. Ultimately, this produces research that reflectsreal-world needs, earns public trust, and drives meaningful change for those itis meant to serve.For patient partners, this is more than contribution. It isagency. It is hope.

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