PO.ADV02 · 患者倡导
将癌症倡导者作为结构性合作伙伴融入肿瘤学会议：基于RISE UP for Breast Cancer and Women's Health大会的可扩展实施模型
Embedding cancer advocates as structural partners in oncology conferences: A scalable implementation model based on RISE UP for Breast Cancer and Women's Health Conference
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
背景：患者、研究和政策类癌症倡导者经常被纳入肿瘤学会议，但其参与往往仍停留在象征性层面。我们在2026年RISE UP for Breast Cancer and Women's Health大会上开发并实施了一个全面整合模型，从结构上将倡导者嵌入科学会议的所有维度。
方法：作为规划委员会的倡导负责人，我有机会实施一个多层次的倡导者整合框架，涵盖治理、经费支持、议程编排和现场参与。倡导参与包括大会总议程和各分会场的议程制定、摘要评审以及演讲者和海报的遴选。会议期间，倡导者与风险投资家、行业代表以及医学和监管专家一同担任评委，在这场聚焦女性健康领域高影响力理念的精选竞赛中对提案发表意见。在全体会议上，倡导者分享了他们的故事及其对各类主题的看法，主题涵盖妊娠相关乳腺癌、乳腺癌诊断后应对更年期，以及因子宫肌瘤导致无法受孕等。他们担任海报环节的演讲者，参与观众问答讨论，并在整个展厅内主持非营利倡导组织的信息展台。
结果：由于开展了有针对性的努力以吸引多元化的倡导者群体、大幅降低倡导者注册费以及提供差旅支持奖学金，共有54名倡导者注册参会，占参会者总数的16.18%。在RISE UP大会上，来自六个州的18名倡导者担任演讲者或评委，并且在从科学到临床再到政策相关的100%大会全体会议中均有倡导者进行了发言。倡导者被纳入历时9个月的65场规划会议，并评审和评判了111篇摘要。所有倡导者演讲者均作为RISE UP的受邀嘉宾出席了一场筹款颁奖午宴，以示对其参与会议的感谢。来自研究人员和医生的定性反馈表明，以患者为中心的终点指标、公平性考量和真实世界证据的讨论得到改善，合作机会也有所增加。参会者满意度李克特量表调查问题“您是否认为每个会场中倡导者的故事和倡导者的视角丰富了会议？”的结果尚待公布。
结论：结构性倡导者整合是可行的、可扩展的，并且与参与度和转化相关性的可衡量提升相关联。这一实施模型为寻求从象征性纳入转向与倡导者建立真正伙伴关系的肿瘤学会议提供了一个可复制的框架。
查看英文原文 English abstract
Background: Patient, research and policy cancer advocatesare frequently included in oncology meetings, yet participation often remainssymbolic. We developed and operationalized a full-integration model at the 2026RISE UP for Breast Cancer and Women's Health conference to structurally embedadvocates across all dimensions of a scientific meeting.Methods: As Advocate Lead on the planning committee I hadthe opportunity to implement a multi-level advocate integration frameworkencompassing governance, grant support, programming, and on-site engagement.Advocacy participation included agenda development for the general meeting andindividual sessions, abstract review and speaker and poster selection. Duringthe meeting, advocates were embedded as judges alongside venture capitalists,industry representatives and medical and regulatory experts, to weigh in onpitches at the curated competition that spotlighted high-impact ideas in thewomen's health arena. In the general sessions advocates shared their storiesand their perspectives on topics ranging from pregnancy-related breast cancerto navigating menopause after a breast cancer diagnosis, to inability toconceive due to uterine fibroids. They served as presenters at poster sessions,participated in audience Q/A discussions, and hosted non-profit advocacyorganization information tables throughout the exhibit hall.Results: As a result of a targeted effort to attract adiverse group of advocates, a steeply reduced advocate registration fee, aswell as travel support scholarships, 54 advocates registered for theconference, representing 16.18% of total attendees. At RISE UP, 18 advocatesfrom six states served as speakers or judges, and an advocate presented in 100%of conference general sessions ranging from scientific to clinical to policyrelated. Advocates were integrated into 65 planning meetings over 9-months andreviewed and judged 111 abstracts. All advocate speakers were the invitedguests of RISE UP at a fundraiser awards luncheon as a show of appreciation fortheir participation in the meeting. Qualitative feedback from researchers andphysicians indicated improved discussion of patient-centered endpoints, equityconsiderations, and real-world evidence as well as increased opportunity forcollaboration. The results of the attendee satisfaction Likert Scale surveyquestion: Do you feel that the advocate stories and advocate perspectives ineach session enriched the meeting? are forthcoming.Conclusions: Structural advocate integration is feasible,scalable, and associated with measurable increases in engagement andtranslational relevance. This implementation model provides a replicableframework for oncology conferences seeking to move from symbolic inclusion toauthentic partnership with advocates.