Thriving in the grey: A patient needs model to balance science and reality

This poster presents a framework for encouraging the Patient Voice and empowering Patient Agency for neuroendocrine tumor (NET) cancer patients, an uncommon cancer. Utilizing Maslow's hierarchy of needs, it defines a Patient's Matrix of Needs outlining patient education priorities, as well as medical and caregiver engagement and empowerment strategies. In socializing this model with Patients, we seek to accelerate a Patient's understanding of their diagnosis and thrivership mindset, helping Patients develop a personalized action plan towards meeting their individual needs. In socializing this model with the Research community, we help drive a holistic view of patient care and support the intersection of Patient and Researcher engagement to drive improved discovery and treatment outcomes. NET Research Foundation and other organizations have a wealth of materials and activities that speak to Patient thrivership needs. These materials will benefit from better organization around a Needs Matrix to help Patients more quickly navigate them. Additionally, Research has medical outcome data related to treatments. The poster will include examples of linking research and thrivership educational materials, as well as highlight areas for future development to support true NET Patient Agency.