PO.ADV02 · 患者倡导
研究倡导之路:网络研讨会教育
Paths to research advocacy: Webinar education
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
Powell-Drescher卵巢癌研究基金会(Powell-Drescher Ovarian Cancer Research Foundation)自豪地推出"研究倡导之路"(Paths to Research Advocacy),这是一个季度性的教育网络研讨会系列,旨在告知、赋能并激励卵巢癌患者、幸存者及其亲人有意义地参与卵巢癌研究。该系列立足于基金会倡导科学家与幸存者协作的使命,汇聚了领先的研究者、临床医生、倡导者以及幸存者科学家,分享他们独特的历程与视角。每一场活动都将个人故事讲述与及时、相关的研究主题相融合,帮助参与者不仅理解卵巢癌科学领域正在发生什么,还了解他们如何能够在塑造其未来中发挥积极作用。通过坦诚的对话和易于理解的教育,"研究倡导之路"系列旨在:• 通过对新兴研究、临床试验和科学创新提供患者友好的解释,揭开研究过程的神秘面纱。• 凸显多样化的倡导路径,展示幸存者、患者和照护者如何能够为研究作出贡献——无论是通过分享经历、参与研究,还是担任研究伙伴和顾问。• 强化科学家与幸存者的伙伴关系,促进双向对话,提升患者的声音并加速有影响力、以人为本的研究。• 建立社群与信心,确保每位参与者都能在离开时更有能力参与与其技能、兴趣和亲身经历相契合的倡导活动。通过阐明通往研究倡导的众多路径,这一网络研讨会系列赋能卵巢癌患者和幸存者,助力推动那些可能为后世几代人变革诊疗的发现。
查看英文原文 English abstract
The Powell-Drescher Ovarian Cancer Research Foundation is proud to introduce Paths to Research Advocacy, a quarterly educational webinar series created to inform, empower, and inspire ovarian cancer patients, survivors, and their loved ones to engage meaningfully with ovarian cancer research. Grounded in the Foundation's mission to champion collaboration between scientists and survivors, this series brings together leading researchers, clinicians, advocates, and survivor-scientists to share their unique journeys and perspectives. Each session blends personal storytelling with timely, relevant research topics, helping participants understand not only what is happening in ovarian cancer science but how they can play an active role in shaping its future. Through candid conversations and accessible education, the Paths to Research Advocacy series aims to: • Demystify the research process by offering patient-friendly explanations of emerging studies, clinical trials, and scientific innovation. • Highlight diverse advocacy pathways, showing how survivors, patients, and caregivers can contribute to research-whether through sharing experiences, participating in studies, or serving as research partners and advisors. • Strengthen the scientist-survivor partnership, fostering a two-way dialogue that elevates patient voices and accelerates impactful, human-centered research. • Build community and confidence, ensuring every participant walks away better equipped to engage in advocacy that aligns with their skills, interests, and lived experience. By illuminating the many paths to research advocacy, this webinar series empowers ovarian cancer patients and survivors to help drive the discoveries that may transform care for generations to come.