PO.ADV02 · 患者倡导
从沉默到科学：幸存者倡导与社群伙伴关系推动癌症研究公平
From silence to science: Survivor advocacy and community partnership to advance equity in cancer research
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
本海报探讨了由幸存者主导、以社群为参照的倡导如何通过应对限制代表性不足人群参与的文化污名、沉默与不信任，来强化癌症研究中的公平与包容。本工作基于作为一名血液肿瘤幸存者和患者伙伴的亲身经历，凸显了患者、研究者、临床医生与社群网络之间有意义的协作如何能够提高研究的相关性、参与度和知识转化。以南亚社群为焦点，本海报审视了具有文化响应性的对话和患者主导的参与如何能够揭示那些在传统研究环境中常被忽视的早期诊断、临床试验参与和幸存者照护方面的障碍。它强调了患者伙伴在将亲身经历转化为可付诸行动的洞见方面的价值，这些洞见可为研究设计、招募策略和沟通方法提供参考。通过弥合社群倡导与癌症研究，本工作展示了包容性的科学家与幸存者伙伴关系如何能够建立信任、增强研究参与的多样性，并在整个照护连续体中支持更公平的癌症结局。
查看英文原文 English abstract
This poster explores how survivor-led, community-informedadvocacy can strengthen equity and inclusion in cancer research by addressingcultural stigma, silence, and mistrust that limit engagement amongunderrepresented populations. Drawing on lived experience as a blood cancersurvivor and patient partner, this work highlights how meaningful collaborationbetween patients, researchers, clinicians, and community networks can improveresearch relevance, participation, and knowledge translation. Focusing on SouthAsian communities, the poster examines how culturally responsive dialogue andpatient-led engagement can surface barriers to early diagnosis, clinical trialparticipation, and survivorship care that are often overlooked in traditionalresearch settings. It emphasizes the value of patient partners in translatinglived experience into actionable insights that inform research design,recruitment strategies, and communication approaches. By bridging communityadvocacy and cancer research, this work demonstrates how inclusivescientist-survivor partnerships can build trust, enhance diversity in researchparticipation, and support more equitable cancer outcomes across the carecontinuum.