PO.SHP01.02 · 科学与健康政策
癌症之声：一种社区参与的方法，通过纪实剧场转变癌症差异
Cancer Voices: A community-engaged approach to transform cancer disparities through verbatim theater
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
癌症结局差异在伊利诺伊州中部服务不足人群中持续存在，然而传统研究方法往往无法捕捉亲身经历或以有意义的伙伴关系吸引受影响社区参与。本项目采用纪实剧场——一种纪录片式的表演方法——通过讲述故事、定性研究和社区参与来应对癌症差异，旨在提高历史上被排斥群体的代表性，识别以患者为中心研究的障碍，并促进患者、照护者、研究人员和临床医生之间的协作。本项目建立在对伊利诺伊州中部 50 多名癌症幸存者、家庭成员、医疗服务提供者和研究人员的访谈基础之上。访谈记录正被转化为一部纪实剧场剧本，真实记录癌症治疗经历并揭示公平医疗的结构性障碍。通过与伊利诺伊大学癌症研究倡导小组、Prairie Dragon Paddlers、Carle-Mills 乳腺癌研究所、Station Theater 及其他社区组织的合作，我们将呈现两场现场演出（2026 年 4 月至 5 月），预计触及 500 多名社区成员，并通过数字传播将影响扩展至更广泛的受众。演出前后的调查结合引导式讨论，将评估观众对癌症差异的理解、研究参与意愿及所感知的就医障碍的变化。初步结果揭示了显著的治疗和教育价值。访谈参与者一致报告，通过这一定性过程分享他们的叙事具有疗愈和支持作用。幸存者和临床医生都对以一种他们从未接触过的、易于理解的形式集体呈现多元癌症经历表示热情。参与者指出，孤立、沟通碎片化和沉默是癌症治疗期间普遍存在的挑战。许多人将这一纪实剧场干预视为弥合利益相关群体之间分歧、促进癌症研究和医疗服务中新协作的关键机制。这种方法独特地将对参与者的即时生活质量益处与长期结构性变革潜力相结合。通过以社区之声为中心并创造易于理解的科学传播，这一模式为其他通过患者倡导、社区参与和实施科学策略应对癌症差异的机构提供了可复制的框架。（预告片见 https://ipmnewsroom.org/u-of-i-funding-to-help-showcase-cancer-research-through-theater/）
查看英文原文 English abstract
Cancer outcome disparities persist among underserved populations in central Illinois, yet traditional research approaches often fail to capture lived experiences or engage affected communities in meaningful partnerships. This project employs verbatim theater, a documentary performance methodology, to address cancer disparities through storytelling, qualitative research, and community engagement, aiming to increase representation of historically excluded groups, identify barriers to patient-centered research, and foster collaboration among patients, caregivers, researchers, and clinicians. Building on 50+ interviews with cancer survivors, family members, healthcare providers, and researchers across central Illinois. Interview transcripts are being transformed into a verbatim theater script that authentically documents cancer treatment experiences and illuminates structural barriers to equitable care. Through partnerships with University of Illinois Cancer Research Advocacy Group, Prairie Dragon Paddlers, Carle-Mills Breast Cancer Institute, Station Theater, and other community organizations, we will present two live performances (April-May 2026) projected to reach 500+ community members, with digital distribution extending impact to broader audiences. Pre- and post-performance surveys coupled with facilitated discussions will assess changes in audience understanding of cancer disparities, research engagement intentions, and perceived barriers to care. Preliminary findings reveal significant therapeutic and educational value. Interview participants consistently report that sharing their narratives through this qualitative process has been healing and supportive. Both survivors and clinicians express enthusiasm for seeing diverse cancer experiences represented collectively in an accessible format they have never previously encountered. Participants identify isolation, fragmented communication, and silence as pervasive challenges during cancer treatment. Many view this verbatim theater intervention as a critical mechanism to bridge divides between stakeholder groups and foster new collaborations in cancer research and care delivery. This approach uniquely combines immediate quality-of-life benefits for participants with long-term structural change potential. By centering community voices and creating accessible science communication, this model offers a replicable framework for other institutions addressing cancer disparities through patient advocacy, community engagement, and implementation science strategies. (The trailer can be found at https://ipmnewsroom.org/u-of-i-funding-to-help-showcase-cancer-research-through-theater/)
利益披露 Disclosure
A. G. Smith, None..
C. A. Richard, None..
Z. Madak Erdogan, None.