PO.SHP01.02 · 科学与健康政策
结直肠癌患者的社交媒体和技术偏好
Social media and technology preferences among colorectal cancer patients
作者与单位 Authors & Affiliations
摘要 Abstract
中文摘要
背景：知识、态度和信念影响参与者对遗传学和基因组学研究的参与。然而，对于信息如何在社区内传播仍有更好理解的空间。智能手机的广泛使用使健康信息更易获取，但了解所使用的设备和平台以及使用频率对于有效的健康教育至关重要。
方法：在洛杉矶地区两家医院招募的 57 名 18 岁及以上结直肠癌（CRC）患者中开展了一项横断面调查。调查评估了关于癌症遗传学/基因组检测的知识、态度和信念，以及社交媒体和技术设备的使用及偏好。招募和调查实施均基于每位参与者的偏好语言。
结果：参与者的平均年龄为 53.96 岁（SD = 10.38）。多数人（66.7%）报告以不同频率使用社交媒体，而 33.3% 报告从不使用社交媒体。在每日社交媒体用户中，Facebook 是最受欢迎的平台（48.7%），其次是 WhatsApp（36.8%）、TikTok（35.1%）和 Instagram（24.3%）。关于技术获取，所有参与者都报告拥有智能手机，而仅 26% 能使用平板电脑，22% 能使用笔记本或台式电脑。值得注意的是，64% 的参与者报告需要协助才能使用 Zoom。多数（63%）参与者为男性，64.9% 报告家庭年收入低于 25,000 美元。
结论：这些发现表明智能手机是研究参与者获取在线教育材料和视频的主要设备。社交媒体平台可能是传播健康教育材料的有效途径（因为 66.7% 的人使用它）。然而，仅依赖此途径会排除三分之一报告完全不使用社交媒体的参与者。虽然 Zoom 提供了克服交通和可及性障碍的替代方案，但 64% 的参与者需要协助才能使用它，这凸显了研究人员提供专门支持的必要性。未来研究应探索患者如何通过社交媒体寻求信息，以开发有效的健康教育材料。
查看英文原文 English abstract
Background: Knowledge, attitude, and beliefs impact participant engagement in genetics and genomics research. However, there is still room to better understand how information is disseminated within the community. The widespread use of smartphones has made health information more accessible, but understanding the devices and platforms used, as well as usage frequency is essential for effective health education.
Methods: A cross-sectional survey was conducted among 57 colorectal cancer (CRC) patients aged 18+ recruited at two Los Angeles area hospitals. The survey assessed knowledge, attitudes, and beliefs regarding cancer genetics/ genomic testing, as well as social media and technological device usage and preferences. Recruitment and survey administration were based on each participant's preferred language.
Results : The average age of participants was 53.96 years (SD = 10.38). Most, 66.7%, reported using social media at varying frequencies, while 33.3% reported never using social media. Among daily social media users, Facebook was the most popular platform (48.7%), followed by WhatsApp (36.8%), TikTok (35.1%), and Instagram (24.3%). Regarding access to technology, all participants reported owning a smartphone, while only 26% had access to a tablet and 22% had access to a laptop or desktop. Notably, 64% of participants reported needing assistance to access Zoom. The majority (63%) of participants were male, and 64.9% reported an annual household income of less than $25,000.
Conclusion: These findings indicate that smartphones are the primary device utilized by study participants to access online educational materials and videos. Social media platforms could be effective to disseminate health education materials (as 66.7% used it). However, relying solely on this would exclude the one in three participants who reported not using social media at all. While Zoom offers an alternative to overcome transportation and accessibility barriers, 64% of participants require assistance to use it, highlighting the need for dedicated support from research staff. Future research should explore how patients seek information through social media to develop effective health education materials.
利益披露 Disclosure
I. B. Ulloa, None..
B. Y. Wang, None.