PO.PS01.10 · 人群科学

考察数字化生存者照护工具包的情境化困扰与实用性

Examining contextual distress and utility of a digital survivorship care toolkit

编号 880 展板 26 时间 4/19 02:00–05:00 区域 Section 34 主讲 Kimlin Ashing, PhD

分会场 Survivorship Research

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作者与单位 Authors & Affiliations

Kimlin Ashing¹, Floyd Willis², Christopher Williams², John McCall³, Gaole Song¹, Douglas Adu-Fokuo¹, Erika Galdamez¹, Fornati Bedell¹, Cassandra N. Moore,⁴, EWAN COBRAN⁵, Che Ngufor⁶, Kathleen J. Yost², Timethia J. Bonner², Getachew Dagne⁷, Arnold Merriweather⁸, Ernest T. Kaninjing⁹, Rotimi Oladapo¹⁰, Roxana S. Dronca¹¹, Folakemi T. Odedina¹²

¹City of Hope National Medical Center, Duarte, CA,²Mayo Clinic Comprehensive Cancer Center, Jacksonville, FL,³D'Veal Family and Youth Services, Pasadena, CA,⁴Mayo Clinic Comprehensive Center, Arizona, AZ,⁵African Caribbean Cancer Consortium, Philadelphia, PA,⁶Mayo Clinic Comprehensive Cancer Center, Minnesota, MN,⁷University of South Florida, Tampa, FL,⁸Legion Post 197, Jacksonville, FL,⁹Georgia College & State University, Milledgeville, GA,¹⁰Covenant University of Nigeria, Nigeria, Nigeria,¹¹Mayo Clinic College of Medicine and Science, Jacksonville, FL,¹²Mayo Clinic Florida, Jacksonville, FL

摘要 Abstract

中文摘要

引言：在社会驱动因素（SDH）的背景下关注生存者照护（包括困扰）至关重要，但目前这方面仍有欠缺。为此，这项针对黑人前列腺癌（CaP）生存者（CaPS）的新颖研究旨在测量SDH相关困扰，并评估一项数字化干预措施的实用性，以为生存者研究、实践和结局提供依据。方法：本研究以生存者科学（Science of Survivorship）以及我们与多部门利益相关方开展的试点研究为依据，评估了SDH以及数字化生存者照护（SC）工具包的可接受性/实用性。SCToolkit是一种数字化的全人照护工具，由临床医生和生存者等多部门利益相关方提供指导。SCToolkit包括：基于ASCO的治疗总结模板（涵盖诊断、治疗、副作用、照护团队、遗传学和合并症），以及关于生存者相关问题、与医务人员沟通、健康提示、生存者照护手册、SDH FINDHELP资源和生存者视频的患者主动指导。SCToolkit通过生存者个人的REDCap文件递送，并可上传至其电子病历（EMR）患者门户，形成便于使用的生存者路线图，可在智能手机、笔记本电脑和台式电脑上访问。通过Zoom提供动机式访谈，以促进数字化效能和SCToolkit的使用。使用SAS进行描述性分析。

查看英文原文 English abstract

Introduction: Attending to survivorship including distress in the contexts of social drivers (SDH) is critical but lacking. In response, this novel research on Black CaP survivors (CaPS) aims to measure SDH distresses and assess utility of a digital intervention to inform survivorship studies, practice and outcomes. Method: Informed by the Science of Survivorship, and our pilot study with multisectoral stakeholders, we assessed SDH and acceptability/utility of a digital Survivorship Care (SC) Toolkit. SCToolkit is a digitized whole-person care with guidance from multisectoral stakeholders e.g., clinicians and survivors. SCToolkit includes: ASCO informed treatment summary template for diagnostics, treatments, side effects, care team, genetics, and comorbidities, and patient active guide on survivorship concerns, provider communication, health advisories, survivorship care booklet, SDH FINDHELP resource, and survivorship videos. SCToolkit was delivered via survivors' personal REDCap file, and can be uploaded to their EMR patient portal for easy-to-use survivorship roadmap accessible on smartphones, laptops, and computers. Motivational Interviewing was provided via Zoom to facilitate digital efficacy and SCToolkit use. Descriptive analyses were conducted using SAS.

利益披露 Disclosure

K. Ashing, None.. F. Willis, None.. C. Williams, None.. G. Song, None.. D. Adu-Fokuo, None.. E. Galdamez, None.. F. Bedell, None.. C. N. Moore,, None.. E. Cobran, None.. C. Ngufor, None.. K. J. Yost, None.. T. J. Bonner, None.. G. Dagne, None.. A. Merriweather, None.. R. Oladapo, None.

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