PO.ADV01 · 患者倡导
From survivor to partner: integrating patient voice across the cancer research continuum
作者与单位
摘要 Abstract
From bench to bedside, cancer research translates scientificinnovation into patient care - yet integrating the patient voice across thatcontinuum requires a shift in research culture. For those who choose to movebeyond survivorship into advocacy, the role of patient partner transformslived experience into a scientific asset, amplifying impact from discovery tocare.Clinical outcomes are the cornerstone of cancer research -yet treatment carries costs that extend far beyond - physical, psychological,economic, and caregiver burden. Patient partners bring these dimensions to theforefront, ensuring research reflects the full human cost of cancer treatment.Their contributions span the research process - from study design and grantapplications to clinical trial recruitment and dissemination of findings -while extending beyond into policy and legislative advocacy and fundraising.Realizing the full potential of this partnership demandsconfronting real barriers: communication gaps, structural exclusion, anddiffering priorities. Bridging these requires shared commitment - researcherscommunicating in lay terms; patient partners deepening their understanding ofthe scientific process. Ultimately, this produces research that reflectsreal-world needs, earns public trust, and drives meaningful change for those itis meant to serve.For patient partners, this is more than contribution. It isagency. It is hope.